The Microsoft Hackathon was chance for Microsoft to meet someone living with a muscle-wasting condition to gain an insight into the daily challenges of life so that a solution of how to incentivise physiotherapy through gaming.
“Never backwards, always forward. Always.” – from the Marvel series Luke Cage On Tuesday 18th October I attended MDUK’s All Party Parliamentary Group (APPG) calling for improvements accessing specialist neuromuscular care. APPG’s are an important aspect of MDUK’s role to make changes for people living with muscular dystrophy, giving us the right platform to voice our concerns to the people in power and educate them on what is important from the patients’… Read More
Adult life does come with more responsibilities, independence and future planning regardless of ability. Finding employment or career opportunities does involve some travelling. Having a disability like Duchenne which requires complex care does make travelling more complicated but not impossible. Able-bodied people do not have as many issues to consider when travelling in comparison to disabled people who face barriers before they can even enjoy themselves. September was a month where I was… Read More
DISCLAIMER: All views expressed are entirely my own Physiotherapy is a major part of living with Duchenne MD from childhood to adulthood. With DMD, it’s not like you can go to the gym and just get stronger. It’s a balance act, so it’s important that you get the right kind of Physiotherapy in the right way. The needs of people with DMD do not decrease but increases over time. Physiotherapy is concerned… Read More
An account of my work experience at Muscular Dystrophy UK