Living with Duchenne Muscular Dystrophy has taught me to be the type of person who enjoys finding solutions to problems caused by either muscle degeneration or the need to adapt standard equipment. It taps into my creative ‘outside the box’ mentality. My Mum also happens to be great at understanding a problem and helping me implement a potential fix. About 3 years ago, I was having serious problems with gaming, due to… Read More
Chronicles from The Hacked! Gaming Re-designed Exhibition at the BOM art gallery
The Microsoft Hackathon was chance for Microsoft to meet someone living with a muscle-wasting condition to gain an insight into the daily challenges of life so that a solution of how to incentivise physiotherapy through gaming.
PLEASE NOTE: I did not attend E3 2017 & all opinions are my own The gaming industry recently had one of its biggest conferences: E3 2017. This year was full of positive surprises, new VR technology, disappointments & mind-blowing unveilings. Nintendo unveiled the fantastic Mario Odyssey on the new console Nintendo Switch. Nintendo brought back the innovation it is known for whilst valuing the nostalgia of older gamers. Inclusivity is at the… Read More
“Never backwards, always forward. Always.” – from the Marvel series Luke Cage On Tuesday 18th October I attended MDUK’s All Party Parliamentary Group (APPG) calling for improvements accessing specialist neuromuscular care. APPG’s are an important aspect of MDUK’s role to make changes for people living with muscular dystrophy, giving us the right platform to voice our concerns to the people in power and educate them on what is important from the patients’… Read More
DISCLAIMER: All views expressed are entirely my own Physiotherapy is a major part of living with Duchenne MD from childhood to adulthood. With DMD, it’s not like you can go to the gym and just get stronger. It’s a balance act, so it’s important that you get the right kind of Physiotherapy in the right way. The needs of people with DMD do not decrease but increases over time. Physiotherapy is concerned… Read More
An account of my work experience at Muscular Dystrophy UK